Disabilities

A warm family breakfast scene in a sunny kitchen. A father wearing a yellow sweater pours syrup on pancakes while his child laughs joyfully. A young person in a beige sweatshirt helps prepare food at the wooden table, which is set with green plates, berries, and orange juice. The image captures a moment of connection and happiness during a shared meal.

Advancing self-determination and promoting equity among the diversity of people with disabilities. 

The Center advances self-determination among the diversity of people with disabilities and their families, throughout the life course, promoting equity to ensure their full participation in all aspects of community life.

Thrive Center is a proud home for the, the Georgetown University Center for Excellence in Developmental Disabilities (GUCEDD), which for over half a century has worked in collaboration with people with disabilities, their family members, and community partners to advance the broad spectrum of interests and needs of people with developmental and other disabilities across the life course. The GUCEDD champions the rights of all people with disabilities to receive an education, access healthcare and mental health care, seek and maintain meaningful employment, build social relationships, and live in homes and communities of their choice.

Guided by its Advisory Council (GAC), the GUCEDD conducts:
● Interdisciplinary pre-service training
● Continuing education and community training
● Community services and technical assistance
● Research and evaluation
● Information dissemination

Current Research

Troxel, M., Kraper, C., Verbalis, A., Safer-Lichtenstein, J., Seese, S., Ratto, A., … & Anthony, L. G. (2024). Reaching “the other half”: Teacher referral increases inclusivity in intervention research for neurodivergent school-age childrenJournal of Clinical Child & Adolescent Psychology, 1-14.

A group of young people gathered around a table in what appears to be a community or recreational space. In the foreground, someone in a bright yellow hoodie is looking at playing cards, while others are engaged in various activities. One person wears a green beanie hat and striped shirt, and there are craft materials or games visible on the dark table surface. The setting has a casual, social atmosphere with natural lighting coming from a window in the background.

Key Activities

Technical Assistance

Workforce Development

Georgetown Leadership Education in Neurodevelopmental Disabilities (GULEND)
GULEND is an interdisciplinary training program focused on strengthening the local services and supports for people with disabilities and their families across the lifespan. GULEND provides training to clinicians and related service providers at any level of their career, persons with lived experience of disability,family members, advocates, and other personnel. GULEND offers a Mentorship for Equity component, designed to support trainees to integrate cultural and linguistic competence in their career and life goals.

Georgetown Infant, Early Childhood, Family Mental Health (IECFMH) Leadership
The IECFMH Certificate program is a specialized training designed to prepare parents, caregivers, and professionals as Community Mental Health Workers (CMHWs). This program aims to diversify the public and mental health workforce by equipping CMHWs—particularly those from equity-deserving communities—with the skills to support families impacted by social determinants of health and the lived experiences of disability to access appropriate health and mental health care in communities affected by structural inequities. Upon completion, participants earn a certificate that not only enhances their professional qualifications but also opens pathways for career advancement in medical, early childhood, and/or community-based settings.

Georgetown University Certificate in Early Intervention (GUCEI)
This online certificate program equips professionals with the skills and knowledge to build and deliver services for infants, toddlers, and young children with disabilities or delays in development. Through advanced, evidence-based training, participants learn to apply a “system of care” approach to service delivery. The GUCEI program emphasizes culturally competent, family-centered practices. Graduates are prepared to effectively support young children and their families, fostering positive developmental outcomes.

Advancing Cultural and Linguistic Competence, Diversity, Equity, and Inclusion: New York Office of People With Developmental Disabilities-National Center for Cultural Competence (OPWDD-NCCC) Partnership for Systems Change
A major aspect of this project is to conduct professional development and inservice training that increases staff capacity to develop and implement culturally and linguistically competent policies, procedures, and practices to support the diverse population of persons with intellectual and developmental disabilities and their families that reside in NewYork State. 

Community and Clinical Services

Developmental Evaluation Clinic: The DEC provides developmental evaluation services to babies who were born prematurely. The babies are followed at regular intervals up until 2 years of age. Each baby is evaluated by a team of specialists including a developmental pediatrician, clinical psychologist, and pediatric physical therapist. Verbal feedback, a summary report, and recommendations are provided at the time of the assessment. Referral to community resources is provided to families if it is determined that the child would benefit from early intervention services.

Research and Evaluation

Re-hospitalization Rates for People with Intellectual and Developmental Disabilities in the District of Columbia. This study will provide more information on how these rates compare to adults without diagnosed IDD; factors that contribute to hospitalizations; and the percentage of observed re-hospitalizations that are preventable.

Health Screening for Adults with Intellectual Disabilities. Overall findings showed that with clear guidelines and a fairly simple tracking process, it is possible to assure that individuals with ID in public care receive most recommended preventive health screens, and at higher rates than the general population. 

People

Laura Barrett

Clinical Director and Co-Director of Training, LEND

Joan Beasley

Director of Research & Evaluation, GUCEDD

Rachel Brady

Assistant Professor of Pediatrics

Marisa Brown

Adjunct Research Instructor
Research Instructor Project Director, DC Health Resources Partnership

Kim Bullock

Associate Professor
Director of Community Health Division, Director of Community Health Leadership Development Fellowship, Assistant Director of Community-Based Learning

Maya Coleman

Adjunct Assistant Professor of Pediatrics

Tawara Goode

Associate Professor
Director, Georgetown University National Center for Cultural Competence

Sharonlyn Harrison

GUMC Adjunct — Assistant Professor
Director of Research and Evaluation OPWDD-Georgetown University NCCC Partnership for Systems Change

Diane Jacobstein

Adjunct Associate Professor of Pediatrics

Toby Long

Professor of Pediatrics
Director of Workforce Development, Education, and Training, Thrive Center for Children, Families, and Communities

Libbie Rifkin

Teaching Professor and Associate Director of the Disability Studies Program | Discipline Coordinator

Robin Shaffert

Adjunct Research Instructor

Pamala Trivedi

Associate Professor of Pediatrics

Wendy Whitty

Research Instructor

Ly Xīnzhèn Zhǎngsūn Brown

Assistant Teaching Professor | Adjunct Lecturer
Disability Studies Program Core Faculty; Leadership Education in Neurodevelopmental Disabilities (LEND) Faculty & Self-Advocacy Discipline Coordinator

Resources

A young family member assists a boy in a wheelchair with a laptop as an adult caregiver looks on

Transition Supports for Parents with Intellectual and Developmental Disabilities Partnership Project: Action Plan & Project Final Report for The District of Columbia

 A Review of Cultural Adaptations of Screening Tools for Autism Spectrum Disorders